Lodi Family Brings Fight Against Rare Disease to State Capitol

209 TimesLodi, San Joaquin County Leave a Comment

LODI- Pulmonary hypertension (PH) maybe a relatively rare disease, but it’s a tough reality for sisters TJ and Lauren Spencer. They know all to well how difficult it can be managing PH’s fatigue and other symptoms. Their own father died from it after being one of the first lung transplant patients in the world.

Thanks to the sisters’ many trips to UCSF and participation in various successful pulmonary hypertension awareness campaigns, including a globally distributed BBC special, they have seen more than their share of friends struggling with PH too.

Their efforts to help others with the disease recently paid off in a big way. Due to the gallant efforts of their mother, Lodi native Tracy Espinosa, and Stockton State Senator Cathleen Galgiani, SB 706 will permanently positively impact the California Health and Safety Code.

A Pulmonary Hypertension task force will now be created so that advances in treatment and diagnosis of this terrible disease will be better shared and disseminated.

SB 706

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